SERVICE
Linked Health Data Foundation provides a critical service that supports human health. While complex technical issues are discussed within Federal, state, and organization conference rooms, practicality must prevail. Human health is not supported by technology systems, it is supported by people that understand and trust those systems. Scientific innovation and medical care is not a byproduct of technology, it is one of information aggregation, synthesis, and problem solving.
There is no doubt that the expansion of actual patient data can unlock the doors to personalized medicine, patient centered care, excellence in health management, disease risk mitigation and cure, and operational management that shifts fiscal resources from waste to service. Proper utilization and organizational transformation to computer aided decision support must follow the path from validated, high quality data. If this doesn’t come first, the rest doesn’t matter.
Our Credo
Providence comes from knowledgeTM. Our knowledge of the human genome, physiologic pathways, effects of disease, and safer, more efficacious treatments for patients, will advance at an even greater rate in the next decade through the ability to expand our reach by using computational analysis, mathematical modeling, and observational correlations.
Beneficiaries of Our Work
Patients |
Co-management of health decisions with doctors is only attainable if people can overcome their lack of health and technology literacy. Once there is trust and reliability in the data and it can be used by individuals to manage health based on the expected outcomes of their decisions, patients will become actively engaged in health management. Individuals must also be served with stringent privacy codes of conduct that insure the protection of their rights. As health professionals and researchers leverage this valuable information into better treatment and management of illness, individuals will also be more receptive to allowing their health records to be used to advance science and medicine. |
Doctors and Health Professionals |
The practice of medicine and holistic health is guided by extensive education, outcomes research, and synthesizing general with individual care practices. Without regard to the specialization of the health practitioner, every decision is based on multiple points of data input. Today, this is performed using tangibles such as books, conferences, articles, and peer-to-peer discussion. In the near future, it is to be done using computers and complex algorithms that aggregate, synthesize, and process data using unseen inputs. Stringent guidelines governing data quality, training on suitable models and outcomes validation, as well as hands on training must preclude expectations of health IT adoption. |
Scientists and Researchers |
For the first time in history, scientists and researchers will be able to combine repositories of scientific data with actual outcomes data as they develop better treatments for illness and disease. Reducing the cost of scientific discovery and development , while increasing safety and quality accelerates medical progress. |
Hospital and Care Facilities |
Expanding and improving hospital services, quality measures, and value requires analysis of larger patient populations and treatment outcomes than are available in internal data repositories. Best practice standards of care and treatment guidelines based on quality outcomes data will mitigate errors and improve the value of the care provided. |
Insurance Providers |
Individualizing medicine to the specific patient saves time and money. To do so, insurance providers must be nimble and responsive to each patient using computational analysis to support situational awareness and cost effective care. Knowing that the data passes specific quality criteria prior to its use advances patient centered care. |
Federal Agencies |
Whether responsible for approving new therapies, advancing research, caring for the military, or monitoring epidemics or health threats, the combined federal agencies have direct impact on the health and well being of every individual in the US and beyond. It is imperative that the data used to support these decisions is quality controlled, validated, and accurately studied. |
Medical Product Manufacturers |
In the course of their lifetime, individuals are exposed to millions of medical products. Today, safety and efficacy is determined by the results of human clinical trials or anecdotal data that supports safety and efficacy. The inclusion of outcomes and comparative effectiveness analysis, using high quality data that is validated against specific measures will vastly expand the availability of personalized medical products that are more safe and effective. |
Links between scientific hypothesis, disease pathway, and treatment outcome must be understood at all levels within scientific and medical organizations using technologies that are proven to be accurate and transparent for the non-technical professional.
"Evidence based" is simply a term if the data and results of analysis cannot be proven to be evidence in an era of computer dependence.